Funny enough, you’re as wrong as you could possibly be. Could be I’m just lucky to have an amazing rheumatology team but it seems like they should have a minimum requirement of knowing how to treat.
You are indeed very lucky. It sounds like your illness is well managed. Congratulations. For many people, their chronic illness is a great deal harder than yours, though you may find it hard to put yourself in their shoes if you haven’t suffered. Not everybody has a team to advocate for them, but perhaps you can’t imagine what that’s like. I thought I could offer a window into the existence of someone less fortunate, but I can’t gift you with the empathy to look.
If you had empathy for them, you’d want that money going to making sure they have regular appointments with experts who are much more likely to know if it’s something that is likely to help or if it’s just another clone drug that marginally better for some people but really just designed to extend patents and charge an absurd premium rather than peddling that stuff as a serious hope for every person suffering from the disease just to let them down again.
