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17 points

I‘m a little shocked at the amount of gatekeeping in this community. That was less of a problem on reddit tbh.

We „the autistic community“ have decided that self diagnosis is valid and that is a fact. So lets just not discuss the idea of the boogeyman posing as an autistic person and just accept people.

Thanks and have a great day. :)

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7 points

A posted picture by an individual is not a community collectively deciding.

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3 points

I know and I wasn’t specifically addressing that picture but also multiple comments stating that someone might abuse self diagnosis, which to me is just gatekeeping.

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-2 points

That’s not gatekeeping

This is gatekeeping:

We „the autistic community“ have decided that self diagnosis is valid and that is a fact. So lets just not discuss

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5 points

We „the autistic community“ have decided that self diagnosis is valid

You are not the entire autistic community. Accept that people can have different opinions.

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2 points

I never said that. But I am part of it and I am happy that we accept people who self diagnose since it is tremendously difficult in certain circumstances to get a diagnosis.

Additionally, I find it unfair to not state „the autistic community as a whole has decided but my opinion is different“. People will get the wrong impression and we further empower aba and other anti autistic measures if we allow gatekeeping.

I‘m not trying to fight here. I just want people not alienated. Make any sense?

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3 points

Your view makes sense and you’re free to believe it.

But many others have different views.

For example the comment of whoisearth described a negative experience with overinclusion. Their view is valid and to be considered.

You answered with “let’s just not try and gatekeep and we’re on the same page”, simply ignoring their point and asking them to unconditionally adopt your view.

You are free to only consider your view and ignore or even discredit others (as “gatekeeping”).

But do not act like you represent us.

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4 points

We „the autistic community“ have decided that self diagnosis is valid and that is a fact.

So true and I recommend anyone who spends time in online autism communities just get involved in IRL autism communities instead. I find online autism communities utterly toxic and full of gatekeeping and hatred for self diagnosis, which no one I’ve met in person has ever had a problem with.

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4 points

Thanks for saying that. I was genuinely baffled that nobody actually came to support this.

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2 points

No problem. I remember talking to my friend who works in autism support before my assessment, and I was shocked when he said it’s still valid to identify as autistic even if you get a negative diagnosis. I said “they wouldn’t like that on the autism forums” and he just rolled his eyes. The online community really isn’t what the community is like!

My assessor said the same thing. There’s a spectrum of symptoms and no objective test, and ultimately for low support needs, whether yours reach the clinical significance for a diagnosis is a judgement call. You wouldn’t have passed the preliminary meeting to get a full assessment at all if you didn’t have autistic traits.

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-5 points

This is so not the case as on reddit and I’m disappointed to hear someone say that. As the father of an L2 child the majority of autistic and “autistic” people online are the exception not the rule. This is why subreddits like spicyautism came around because of the deluge of asshats who don’t represent the silent masses of autism minimizing the struggles of life.

I’m sorry if that comes across confrontational but it’s the reason why for many, myself included, the main autistic subs became a toxic cesspool of self diagnosed people invalidating real autistic people because they know better.

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6 points

It really comes off confrontational. As an autistic adult with an autistic wife I can vouch for the exact opposite. It took me years to get a diagnosis, same for my wife.

We don’t have any resources for autistic adults, doctors don’t know shit about autism in adults and if someone has an abuse trauma, they get institutionalized for that instead of looking at the bigger picture.

I don’t wan to fight you. Your feelings and experiences are valid. Let’s just not try and gatekeep and we‘re on the same page, deal?

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-1 points

@Haui @whoisearth
I don’t understand your “It really comes off confrontational.” What is it in your words.

I had one visit with a pcp, and then read his session notes because I could. It was obvious that he really didn’t get what I said and instead reported that I was flakey, rather than consider that there was more depth than he could recognize. I wrote to correct him. I may have to teach him that diferent is not bad or dumb or a disability, it can also be a superpower. Just because I stim behind my back, doesnt mean that I can’t understand particle physics and ask hard questions, or sometime overload and need to leave the room. Medicine is dumb.

You are right, yo don’t want to fight me. As a camo I’m not exactly sure that my feelings are valid, even though my memories are sharp, and I know what I did would piss some people off. I mean, the past is the past and i’m not denying it happened. The reframe is comfort. Every day, millions of 'Oh yeah’s.

I’m working on figure it out.

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2 points

Spicyautism came about as a troll subreddit for non-autistic parents of autistic children to talk about how much they hate low support needs autistic adults. They only posts there that get more than 20 upvotes are “Here’s why I don’t think L1s really have autism”

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-2 points

Proof of just hurting your feels?

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Autism

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