You were disabled and realize it is not getting better, and no one seems to be able to fix the issue. You’re stuck laying down most of the day, you have enough mobility to function at home, but anything outside of home leaves you in bad shape beyond your control where you are not professionally functional. What do you do to earn a living and survive?
This is not a hypothetical for me.
I tried that. I’m in a weird position where it is impossible to prove what is actually wrong with me in a way that I can get through disability. I did it once and was denied because I can’t prove anything conclusive. I’ve been to everyone reputable and a few less reputable; 12 neurosurgeons or specialists. They all spend 5 minutes reading the radiologist’s report, don’t see a thing they want to operate on, and spend another few minutes talking you out of the room. None of them seem willing to solve problems and look deeper.
You may have something different but if you have me/cfs you need to hit up the support groups, you can prove disability with a 2-Day CPET test.
I’m not in the US but many of the Americans in my support group were denied the first time they applied and got it on the second.
A CPET is a cardiopulmonary exercise test. The 2 day CPET is when you get the test and then get it again 24 hours later.
People with me/cfs have different results than sedentary controls, so it’s a good way of helping prove disability.
If you didn’t know what ME/CFS is (myalgic encephalomyelitis) then you haven’t been diagnosed with it and none of this applies to you, but I thought it was worth mentioning in case you had.
If it is ME/CFS come over to !cfs@feddit.de.
We’re not very active but try to keep up with the state of research.
