You were disabled and realize it is not getting better, and no one seems to be able to fix the issue. You’re stuck laying down most of the day, you have enough mobility to function at home, but anything outside of home leaves you in bad shape beyond your control where you are not professionally functional. What do you do to earn a living and survive?
This is not a hypothetical for me.
I’m lucky enough that I’d be able to just continue to do what I currently do, and write code.
Anything on the phone and or computer.
There are also services in 1st world countries that help you get setup
Anything from Programming to helpdesk to customer service to ASMR and anything else in between is possible.
You can do it. This is good first step to ask.
If you can divulge your country and or state there may be people on Lemmy who can direct you to specific resources
You file for government disability. Hopefully during the filing process you can struggle through survival for a few years because the govt disability filing process takes a few years until MAYBE being approved, but everyone is always denied the first time, then you have to appeal and go through the several years process again. This is one reason why so many people are homeless by the way.
I tried that. I’m in a weird position where it is impossible to prove what is actually wrong with me in a way that I can get through disability. I did it once and was denied because I can’t prove anything conclusive. I’ve been to everyone reputable and a few less reputable; 12 neurosurgeons or specialists. They all spend 5 minutes reading the radiologist’s report, don’t see a thing they want to operate on, and spend another few minutes talking you out of the room. None of them seem willing to solve problems and look deeper.
You may have something different but if you have me/cfs you need to hit up the support groups, you can prove disability with a 2-Day CPET test.
I’m not in the US but many of the Americans in my support group were denied the first time they applied and got it on the second.
One of my disabled friends does tech writing. Basically takes the documents the nerds make and wordsmith it so its understandable by laymen. IDK what it takes to get into that field now though. But it is something that might help give some ideas :)
Job #1 is researching all available disability programs you can apply for.