133 points

Adopting is great. Not everyone should do it.

Autism is difficult. Their lives are not ruined.

I can see some of the arguments of antinatalists but the online culture of it seems to have a nihilism/blackpill problem.

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75 points

It’s autism, not a death sentence.

To me, it seems like online discussions for any stance, has to turn to it’s most extreme. It’s like their way or highway type of deal. Whatever happened to nuanced discussion, I wonder.

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7 points

I think it stems from the more difficult cases, and people failing to realize the actual suffering that comes with that.

As with all extremes, a lot of emotions are involved. People who see / experience the hardships don’t feel heard. As the general tendency is that one needs to be alive and that this is good, this hurts people who do not want to live (like this).

Going to a lot of trouble to conceive, and bringing triple the amount of possible suffering that people experience can be felt as worse than a death sentence. Therefore people feel the need to be vocal about this.

But in the end I agree, there is nuance. But there is the extreme as well, which weighs heavier here?

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8 points

Exactly this.

A life like the ones that suffer, you just wouldn’t wish upon someone innocent. Though going full eugenics is a bit too far off the end there. I get it, but I don’t agree that everyone should avoid having children.

Though it does pain me to see this one couple (both autistic) have a child without considering how the kid will be affected. Despite one of them having a low-functioning brother who is a burden (and I don’t mean lightly) on their mother and she never helps her out.

It’s an extreme case here. I just hope their daughter will have a good life.

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0 points

you’re right but don’t underestimate redditor’s self righteousness so fast. They convinced themselves they are absolutely right and moral so everyone who thinks differently is evil and the one who aren’t as radicals are idiot. This post stems first from a posture which is basically “I know EXACTLY how to live the perfect healthy life and everyone who thinks differently is brainwashed and stupid”

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-17 points
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We would certainly be better off without it. Doesn’t it have a much higher likelihood of happening when women bear children around 40? If we know a partial cause then maybe we should avoid it. I saw a billboard about a 58-year-old woman having a baby and I was horrified.

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8 points

We would certainly be better off without it.

Who, exactly, do you imagine you are speaking for?

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-7 points
Removed by mod
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10 points

I love your username

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6 points

I love lamp

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4 points

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90 points

Why do they think autism is some sort of horror story where kids suffer in agony or something?

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82 points

Autism Speaks played a huuuge part in making that the dominant narrative about autism for the past 20 years or so.

In the 00s (maybe early 10s?) one of the videos they made for parents of newly diagnosed children had a parent talking about how she was considering driving off a bridge to kill herself and her autistic child, but didn’t because her non-autistic child was also in the car. This was presented as totally normal and just a way to prepare for how an autistic child will ruin your life.

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48 points

Autism Speaks is disgusting. What an awful organization. I wish more people knew that.

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17 points

I didn’t know until I saw it getting trashed on the autism subreddit and asked why… So keep getting the word out!

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13 points

I had no idea that existed. Wtf

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6 points

But, there must be ways to manage the ill effects of Autism. Parents can talk to experts, instead dealing with it on their own.

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20 points

I get what you’re saying, and caretakers certainly deserve support, even (especially!) when they’re talking about wanting to kill their own child, even if for no other reason than the child’s safety.

IMO Autism Speaks’ biggest issue is that their money comes from marketing autism as a horrible disease that affects only or primarily children, which only increases stigma against autistic people of all ages. They also have the problem of having no autistic members involved in a meaningful capacity in the organization, and AFAIK the only autistic member of their board of directors left because they were essentially ignored. That absolutely flies in the face of decades of disability advocacy, where a common refrain is “nothing about us without us.”

TL;DR: caretakers deserve support but Autism Speaks is super awful.

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3 points

Malicious misinformation is nothing new I guess.

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1 point

very sane behaviour regarding your child.

When that kind of parents how their autistic child is very difficult and that it keeps getting worse I am always feeling like : Karen, only 10 % of your kid issues are caused by his autism, the 90% are 100% because you treat him like shit and he is turbo-traumatized

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17 points

Suicide is one of the top three causes of death for autistic people. The other two are heart disease and epilepsy complications, and on average we die under 50 years of age.

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40 points

What they don’t understand though is that the suicide part isn’t caused by autism. It’s caused by people being horrible to each other. Or in other words: people with autism die because people without it make living hell for them.

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35 points

Yes, but that’s not due to autism, that’s due to the way society treats autistic people.

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13 points

that’s due to the way society treats autistic people.

So when is that going to change

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1 point

actually everyone treat others like shit. But what NT have is a much stronger upport circle and fewer difference.

By fewer difference I mean that you cant pick on someone that everyone around him does : A boss can’t really bully a NT for using implicite dicourse when all of their collegues does the exact same, they would immediately realise something is wrong. The average NT knowing jackshit about autism, it can be easy to trick them into thinking that ND should “just make an effort” to understand implicite discourse.

That’s sad part, we are technically all targeted with the same amount of flak so if you are slightly out of cover, you get blasted away

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-10 points

supposedly

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6 points

It’s also the 2nd leading cause of death for 2SLGBTQ+ youth:

The Trevor Project’s 2022 National Survey on LGBTQ Youth Mental Health found that 45% of LGBTQ youth seriously considered attempting suicide in the past year, including more than half of transgender and nonbinary youth.

So there’s a lot more suffering in general for anyone basically not white, straight, (and depending on circumstances, male). Autism isn’t a death sentence. While people with severe autism struggle a lot more than most, they can have very good fulfilling lives. Source: My daughter (23) has (moderate) autism and her best friend (23) has severe.

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2 points

can add the healthy for white and straight if you’re in the USA. Also just methodologically poc are faced with very different risk with racially motivated crimes and the fact that ethnic getthoisation create strong social support structures will help curb suicidal tendencies.

Even if the struggles can be similar, the supplementary problem with LGBTQ+, is loneliness. There are actually very few of them, so finding people like you that understand your struggles is very difficult. That really hit me when I talked for the first time with people leading association supporting LGBTQ, most of the work is reaching out to people to tell them they are not alone

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10 points

It’s a mix of the ABA industry, early researchers and socio-environmental issues.

Early researchers cultivate the myth of the normative human. Autists were an altered version of human that has to be corrected. If a human wasn’t corrected to match the norm, it could not be happy in life and will suffer it’s entire life.

So autists have to be corrected (we know it’s false) to be happy whatever the means. It ended with electric shock and others stuffs seen during WW2. This is how ABA was created. It relies on the fears of autists not being happy until they are corrected.

ABA, PBT and all the others acronyms has built an industry worth a lot of money. They finance more research on the field with huge standard, COI and consent issues among others. They need to keep the fear in the population to keep the business up.

The third is the new way to see autism. The struggles of autists are mostly socio-environmental. It means that issues aren’t the person and autism. It’s a lack of acceptance of the diversity by the neurological majority. It implies discrimination, patronizing, and violence against autists.

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3 points

Early researchers cultivate the myth of the normative human.

We are still there with mental illness. People have this idea that there are “normal” people and those who require therapy, as if there is a single person on earth that didn’t come out of their childhood with some level of trauma.

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1 point

Well actually not that much. Two things. First, some trauma can be dealt with thanks to your support circle. Second, the thing is our experience of others is never representative of the overall society. You could look at my social circle and claim it as an argument. But that is not taking in account that my circle is small and not made of average people.

Lastly. Everyone suffered a cold once, they were not damned, not everyone is constantly sick. Though you wouldn’t say there is no difference between sick and healthy people. Still everyone will go to the doctor once. In my country that is this approach much closer to physiological medicine that mental health professional promote.

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6 points
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Deleted by creator
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1 point
Deleted by creator
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75 points
*

Taking a quick look at the comments I see we’re back to 2000s autism speaks bullshit.

Autistic people aren’t suffering unless you’re putting them in a system that treats them as subhuman.

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29 points

Autistic people aren’t suffering unless you’re putting them in a system that treats them as subhuman.

Ah, I see you’re familiar with society as well.

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10 points

I mean, let’s face it, I’ve seen one meme where autism is described as a condition where everyone else around them has a disorder where they say things they don’t mean, where they don’t care about structure, fail to focus strictly on singular topics, have unreliable memories, drop weird hints and stare creepily into eyeballs. And the people with autism are the ones with the disorder, because there are way more of the others.

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7 points

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16 points

Well well well, just look at any job and watch how people are treated.

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14 points
Removed by mod
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5 points

Yes most autistic people shouldn’t suffer if we dismantle the oppressive societal constructs and stigma around the condition and treat them as human.

Most people should suffer if break down the social constructs and stigma around them, from race, gender and sex, class, and many other factors.

Antinatalism is not about selectively culling autistic people. It is about the realization that society sucks and the societal constructs we have are likely to increase suffering and so we shouldn’t have kids anymore until those issues are resolved.

I am gay, and a racial minority, and an antinatalist. I would hate to have a child knowing they would likely have to face racial discrimination just as much as I do not find it moral to have a child because they may be gay, or autistic, or gender nonconforming, or poor. All those things would likely increase their suffering.

But I wouldn’t mind adopting any of those kids, even an autistic child, because live people are people and deserve love and compassion. Antinatalism is about the non-alive children that don’t exist and the stance that they shouldn’t ever come to be, no matter what they end up being because in our current world, live likely won’t be easy, they would likely contribute to the global environment crisis, and will likely increase the suffering in the world. And also they cannot consent to being forced into existence.

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-1 points

I would hate to have a child knowing they would likely have to face racial discrimination

Yep easier to die than dealing with the problem and, you know trying to do something. You know thank god everyone before us choose that instead of striving for social progress, that’s precisely why society has been steadily progressing towards amelioration for at the VERY least the past 500 years.

I do not find it moral to have a child because they may be gay, or autistic, or gender nonconforming, or poor

So… that, my friend, is turbo-eugenics. Yes, because you finding it immoral to have kids because they could be those things means that, if you had a mean to have kids, without those risks it would at least be less immoral. Oh and before you start to find excuse : making every argument for something and just saying at the end that it is bad is not being against something.

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4 points

Autistic people aren’t suffering unless you’re putting them in a system that treats them as subhuman.

While that is true for many of us, it’s not true for all of us. But I’m still sure most of us still like being alive, so i’m not disagreeing with the sentiment behind your argument.

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68 points

I’m not speaking for autistic people here, but I am speaking as parent to two children (now adults) on the spectrum.

Autistic children do not ruin your life and do not have ruined lives themselves. As with all parenting, sometimes things are very, very difficult and sometimes things are very, very easy. This isn’t unique to raising a neurodiverse child, this is just parenting. The unique challenges that parenting a neurodiverse child brings are 99% of the time caused by how society thinks these children/adults are and assumptions about whats best for them without actually asking them rather than any sort of intrinsic issue caused by their autism or ADHD or any other neurological difference. For the remaining 1% of the time, you just do your best.

The narrative that neurological difference, in particular autism, ruins lives has, in its modern form, been with us since Andrew Wakefield first perpetuated his fraudulent claims of vaccine damage causing autism. It was spread by antivaxx/autism activist parent groups like Jenny McCarthy’s Generation Rescue and the truly despicable people at Autism Speaks. These are the people who’ve ruined lives.

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17 points

I like you. I have 2 autistic kids (still kids) and one neurotypical kid. There is no difference in raising them. Every kid has their unique challenges. I never raise my children differently unless it requires it.

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8 points

Agreed! I am also super grateful for the unique experiences autism has provided our family (a trip to the fan museum and carwash show, among others).

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5 points

Tell me more about this car wash show…ヾ(⌐■_■)ノ♪

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6 points

The International Carwash Show happens each year in Las Vegas. It is all sorts of people in the industry: owners, manufacturers, services etc. Everyone was so nice. They even let us walk through the carwash equipment when it was turned on!

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2 points

Are you certain your adult children don’t resent being born with autism?

Because I put on a hella front for my mom. Just throwing that out there.

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13 points

I’m not naive (or arrogant) enough to think I know everything my kids are thinking and neither am I suggesting their lives are 100% perfect but all of them (on the spectrum or not) are all pretty forthright, confident adults. When they were teens they of course went through some shit related to their being autistic, but none of that was because they were autistic, it was down to how other people/situations made them feel because they were autistic. I’m as sure as any parent can ever be that I’ve never detected any kind of prolonged resentment or unhappiness at the fact of their autism.

We never taught them that ‘autism is a superpower’ because it isn’t. Sometimes it has advantages and sometimes there are disadvantages and describing someone elses life as superpowered puts an unrealistic expectation of happiness and accomplishment on them. By the same token, neither are their lives a ruin and my life as their parent most certainly wasn’t ruined.

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3 points

it was down to how other people/situations made them feel because they were autistic.

That’s a meaningless distinction. The end result is identical.

It would be foolhardy to say that you–an assumed neurotypical person–need to be close, personal friends with everyone in your life. You select your friends–and they select you–based on how well you fit each other. The fundamental problem is that autistic people, broadly speaking, don’t fit with neurotypical people. A high-functioning autistic person will eventually realize that, and realize just how utterly alone they are in life. They will realize that the people they think of as friends will never think of them as a friend. Their social circle, if they’re lucky, might consist of a small handful of people with overlapping interests, but are not an actual social support network.

I discovered this in 2014 when I failed to complete a suicide, and lost 95% of the people I believed were friends.

I am functional on a surface level. I have a job, I’m mostly self-sufficient, I’m married to someone that is also likely neurodivergent after having been in an abusive relationship for over a decade. I’ve noticed that the less able we are to mask, the more our social circle contracts. We can not reasonably expect that people will life us, or include us in their social circles.

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8 points

sounds like you resent your mom

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-7 points

How dare you say that to someone with autism about their own experiences? Seems like you’re just inflammatory and an asshole.

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1 point

From personal experience, the ability of people in the spectrum to feel happiness depends entirely on whether their parents were willing to make adjustments to see their children feel well. Most will want their child to be just like every other one and will damage them deeply in the pursuit of that.

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43 points

An autistic life isn’t a ruined life.

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Autism

!autism@lemmy.world

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A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.

We have created our own instance! Visit Autism Place the following community for more info.

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