For those of you who weren’t diagnosed until adulthood (I’m in my late 40s), what was the diagnosis process like? Are you just given a written test, or does someone evaluate you more thoroughly? Do they try to understand your symptoms, or is it more of a checklist? If anyone has personal stories they’d be willing to share, I’d love to hear them. I’m also just curious about what to expect during the appointment. Who do I make it with? A psychiatrist?
I also wonder if there are other related conditions or learning disabilities that I might have, such as dyslexia. Do I need to be proactive in asking for multiple diagnoses? Or will they be able to evaluate me for anything/everything?
I was diagnosed about a year ago. I’m mid-60s. I was given a preliminary inventory to complete and then met with a psychiatrist for further evaluation. She asked me questions and we dug into some topics more than others. Most were about challenges I’ve had in life. At the end she prescribed a medication. I followed up monthly, had a med adjustment and now follow up every 3 months.
As far as other symptoms, I’ve dealt with low thyroid, low testosterone as well as depression. When my child was noted in school to have dysgraphia (poor or illegible handwriting) it brought into focus that I had the same learning disability. This was previous to my adhd diagnosis so I can’t comment on that issue. I work in IT so I’m not bothered by disgraphia as I type everything anyway.
From what I’ve read in various online sources, it seems to vary a LOT between different providers, patients, locations, etc. Even those who live in the same general location seem to have had dramatically different experiences. But, here is what I remember my process being like:
- Made an appointment with a psychiatrist (THIS WAS THE HARDEST PART BY FAR AND I HATED IT - It took me almost an entire year from start to finish to find psychiatrists that were in-network with my insurance, had open availability that wasn’t months and months out, I could get ahold of, specialized in my general areas of need (ADHD + other conditions), etc. Part of the problem was I kept giving up when I’d hit these barriers, to be fair)
- Had a consultation appointment with the psychiatrist where she asked me a lot of introductory questions, going over my general upbringing, career, daily life, concerns, symptoms, things that have helped or hurt, etc.
- Completed a few different questionnaires, some for ADHD and some for other things, like anxiety, and also had to share a questionnaire with my partner for him to fill out from his perspective on me
- Had a follow-up appointment with the psychiatrist plus another more senior psych, where we went through all of my results together and discussed my diagnoses, potential treatment options, etc.
- Had to visit a lab to get general bloodwork done, and also an electrocardiogram, to make sure there weren’t any health concerns to be aware of (or that could explain my symptoms) before trying stimulant medications for the first time
- Got cleared with all of that, had an appointment where we settled on a first medication to try, and then continued to meet with the psych every 2 weeks while we titrated my dosage and medication type.
- Nowadays, I only have an appointment every ~3 months with a psych to check-in and continue my prescriptions and/or update things, etc.
I hope that is helpful! I know it is scary starting the process, but I can’t stress enough how helpful it has been in the end for me. I’m really glad I pushed through and finally got help.
If it helps as well to hear what appointments were like, I found that the psychiatrists I have had (changed psychs occasionally due to moves) tended to be less interested in detailed discussions about feelings, emotions, or symptoms than my therapists have been. Not to say they aren’t interested, they are and they specifically ask things about them. But, they have seemed more interested in a “do you experience this”, “is it the same as before or improved/worsened”, etc, and less interested when I would go on detailed explanations of exactly what I was thinking during a particular event or experience, if that makes any sense. For example, it seemed like they preferred “Most days, I feel like my symptoms are significantly improved during midday, but I tend to consistently get spacey and sluggish around 5 pm every day. Increasing water and protein intake hasn’t seemed to fix it.” rather than, “Well, it’s different everyday, but I usually take my first dose around 9 or 10 AM or so. About an hour after that, I feel less “stuck” and am able to actually get up out of bed and do ‘normal’ things, like brush my teeth or get dressed. Sometimes I don’t get anything done after that, but I still feel more ‘normal’, you know? I tried changing my lunch to include more protein, and…” I realize reading this back that this seems like generic advice to not be long-winded and overly explain things, not just for psychiatrist appointments, but I hope what I’m trying to explain sort of got across lol.
I now realize I’ve written a significantly longer (and long-winded, hah) comment than I intended to, but I hope it is helpful in some way to you or someone else!
I was diagnosed about 7-8 years ago, and I was in my early/mid 30s at the time. I was referred to a specialist by my pcp, and they started out by asking me some questions about my symptoms and whatnot. The final thing I had to do was take this computerized test thing that involved looking at a screen while doing some simple stuff. There were cameras that tracked my eye movement to determine how long I was appearing to focus on what I was supposed to be looking at (versus anywhere else on the screen or in the room). Afterwards, we talked about what meds/dosage to start out with. For the first 6 months or so I was going in almost monthly to adjust my dosage and/or switch meds entirely. Once we found something that worked, I started going in every 2-3 months to check in. Overall, not an unpleasant experience.
Mind if I asked what meds you received in the end? I’m 36 and was put on Lamictal for bipolar… I’m almost certain it’s ADHD but I guess the VA refuses to listen or help me.
Dude, I’m Bipolar, and the VA does drag its feet. Find other service members who have been prescribed ADHD meds and see what they did. I don’t use the VA, but my psychiatrist and therapist diagnosed me with Bipolar and said it wasn’t ADHD, even though I had plenty of lifelong impairments. I stayed with that doctor’s office for eight years, and I was on and off meds for bipolar, and nothing worked. It wasn’t until I ended up in a mental hospital that I finally said enough was enough. I was finally fed up, and after they shew-ed me away for the final time, I finally decided to find another doctor and get a second opinion.
Well, I still have bipolar disorder, but now I’m medicated for ADHD. It changed my life. Now I never have to worry about my bipolar symptoms because keeping up with good habits like sleep, eating, and working out is a breeze on ADHD medication. This keeps my bipolar at bay, and I still take meds. I can’t tell you how awesome my life keeps turning out now that I’m medicated. Fight for this! They don’t understand what we are going through or they wouldn’t stop us from getting damn relief.
Thanks for this. Getting to the point where I’m going to give up on the VA. The freeness of the VA care is nice. I have tricare for life so I may as well try to utilize that and see if I can get an outside source to make an opinion. I strongly believe I have ADHD, but no one will listen. I can tell they look at me like I’m some drug seeker. I could see if my history pointed to that; but it’s like they don’t even consider my past in fixing my future.
Vyvanse is what I ended up on, and it worked wonders. I actually had to stop cold turkey a week ago while my doctor figures out why I have high blood pressure, and it’s been a pretty rough week. I kind of forgot how much of a help the Vyvanse was for my daily quality of life.
“There’s no way you have ADHD since you didn’t have symptoms as a kid” … instead I have bipolar. I believe it’s ADHD, can’t get anyone to listen. I’m not hunting for god damn stimulants. Im 36 with 3 kids… I just want help.
Have you tried Welbutrin? It’s not a highly controlled substance and doctors are pretty willing to prescribe it. It acts on dopamine and many people have found it helpful for ADHD.
One of the problems explained to me by my doctor is that executive dysfunction is the key symptom of ADHD, and it’s not hard to diagnose executive dysfunction. The problem is that executive dysfunction can also be caused by other conditions like MDD or Bipolar, and in those cases, ADHD treatment may not actually help.
That being said, I’m sorry you’re being denied the opportunity to try treatments that might help. Although I can understand providers being hesitant to give stimulants with abuse potential to someone with manic tendencies. Hopefully you can try some of the non-stimulant options and see if they help
I’ve was in my late 30’s on active duty in the military. As someone who has been in more than a decade, I still couldn’t remember all my uniform pieces on workout days.
When I spoke to my doctor, he referred me of base for testing. There testing was fairly straight forward. There was some testing for learning disabilities and IQ. Mostly written work, but half was doing a rather long computer questionnaire. When I took the test for the ADHD it was a particularly bad day. Apparently the psychiatrist had seen 3rd graders with worse scores. I think she thought I threw the test. When the testing concluded I got the results and went back to base for the rest of the treatment.
I don’t know your circumstances, but I would advise simply asking your doctor for a referral. They did check for other disabilities, and also other contributing conditions, like depression. Getting treatment started with a few different drugs in very small doses. My biochemistry muddy be off because I had significant reactions to those small doses, but just communicating was able to solve it all. There was even one that made me not want sleep anymore. On day 2, I called and they made me stop immediately (given that is pushing deadly if it continued). So definitely don’t think it’s all smooth sailing.
On the far side of that wall now it’s amazing though. I can read again and play video games again for longer than a simple phone game. Once you figure out the right balance for your body chemistry, you’ll be amazed you managed without it.
Surprised you got the service to help you. I’m trying to get the VA to help me. The neuro sent out a questionnaire to my mom; but because I didn’t show symptoms as a kid as she put it in her questionnaire they just auto assumed I didn’t have it. Then I told my mother all the symptoms I did have and hid. She just refused to believe me.
Now the VA won’t take the time to help me because of my mother’s questionnaire. The neuro said I have symptoms of ADHD and showing inattentive type. But the psychs refuse to go off the neuros DX. It’s annoying.
I’m almost certain I have ADHD; but can’t find help. I’m not seeking adderall damn it.
Honestly, my experience almost feels unique when looking online. However, after almost 30 years I have only experienced negative interactions on par with what my brother reports from civilian care.
Also, I wouldn’t be certain on your diagnosis without getting a professional involved. We thought my kiddo had ADHD. She had all my symptoms, but upon better scrutiny, she actually had a visual processing disorder that presents almost identically.