cross-posted from: https://lemmy.autism.place/post/222147

Iā€™m excited to see what everyone elseā€™s said, if we have a lot in common, and if some of us have some funny stuff too.

Also, promoting !autism@lemmy.autism.place

He had a huge collection of toy cars and Legoā€™s. He was very into video games in which he designed and built things.

He could not stand when his foods touched.

His uncle, the last of this remaining relatives, points out that he was ā€œnot normalā€.

He had difficulty sitting still, made noise, and was disruptive.

He has always talked to himself and would narrate what he was doing almost as though someone was in the room.

ā€¦Has liked to collect information about history and anything about science. He reports he ā€œcan be annoyingā€ about it.

Though he is heterosexual, he would hang out with the gay kids because they were more accepting.

He joined the Marine Corpsā€¦it was a very intense and loud experience.

He had a very sensitive sense of smell, and would smell people as a child.

He is very sensitive to the texture of clothing and doesnā€™t tolerate tags. He is particular about his shoes.

He does not like to be interrupted at work and this offends other people. [He] becomes overwhelmed by unnecessary tasks such as work emails.

permalink
report
reply
2 points

11/13 for me

permalink
report
parent
reply
2 points

Your collection of toy cars reminded me that I loved Hot Wheels as a kid in the '90s and early '00s. And I would often have to get more whenever we went to the store. Or at the very least see what they had. Luckily they were cheap so my parents were ok getting 1 or 2 each time.
I was also really good at remembering what ones I already had, so I knew at the store what ones I didnā€™t have.
Itā€™s been a long time since I counted, but I amassed over 300 cars by the time I grew out of them.

permalink
report
parent
reply

yep! we were very similar šŸ™‚

permalink
report
parent
reply
16 points

I appreciate the story of these two sentences illustrating growing up without any diagnosis:

ā€œReceived 4th grade math homework in 2nd grade because he got furious over how trivial homework was.ā€

ā€¦16 years laterā€¦

ā€œPatient has with SIGNIFICANT difficulties and enormous effort managed to complete an education.ā€ (Emphasis theirs)

permalink
report
reply

can you explain what you see as the story from those two quotes pls?

permalink
report
parent
reply
5 points

Sure!

Itā€™s apparently a common thing: Kids who are ā€œsmartā€ and are clearly naturally interested in learning, are not followed up usefully. They can read novels and some basic multiplication, but have to sit in school and say the alphabet out loud and add single digits for months. Before proceeding to be told to read basic sentences for another few weeks, etc.

They are not pushed and challenged like their classmates. The teachers think everything is FINE because they are not behind, but the kids spend a full decade not learning to study properly because they donā€™t ever have to. They rather learn that they can fuck around and wing it and it will be passable.

Then at some point, age 15 and up, they are getting to proper challenging stuff. Armed with zero habits, no experience in failing, no experience in planning and organizing and studying methodicallyā€¦ Many drop out, burn out, get depressed, or all of those at once.

permalink
report
parent
reply
5 points

I am in this picture. I excelled in school almost all years and graduated in the top ten of my high school class. Then I went to an engineering school and got my ass handed to me. I managed to graduate after 5 years, but it was a struggle and my GPA was noticeably worse than high school.

permalink
report
parent
reply
8 points
  • a long time without two-way communication, now he can adapt because itā€™s expected of him
  • mostly uniform ā€œsocial smileā€ with little variation
  • generally a rather uniform and seemingly distant facial expression
  • social chatting only with family members, not others
  • little interest in other kids his age, rarely (if at all) being the one to initiate contact

Found this in some doctors notes from a few years back, not sure if it was specifically autism related but it seems close enough :P

Itā€™s kinda funny now seeing my smile at the time being described with little variation and sometimes seeming sightly condescending. Makes me wonder how much of that was just me trying to smile at appropriate times

permalink
report
reply

What are uniform and distant facial expressions?? This is what Iā€™m imagining:

permalink
report
parent
reply
4 points

lol. Is that an HDMI port as mouth? :P

Basically meant a neutral facial expression with little variation, mostly staying the same. And distant as in ā€œthis has nothing to do with meā€ or ā€œwhateverā€¦ā€

permalink
report
parent
reply

lol

šŸ˜†

Is that an HDMI port as mouth? :P

It looks like one! But what I was going for was a forced smile.

distant as in ā€œthis has nothing to do with meā€ or ā€œwhateverā€¦ā€

ohhh yeahhhh, I know that feeling. Iā€™m going to pay attention to see if I notice a resembling facial expression.

permalink
report
parent
reply
5 points

His eye contact was variable; at times he avoided eye contact and at times he utilized intense, prolonged eye contact. He was able to communicate his own feelings and showed insight into othersā€™ emotions, though he did not spontaneously label emotions during any of the activities.

Radicalautonomy showed some insight into the nature of some social relationships but had trouble understanding his own role in them. Generally, Radicalautonomy frequently attempted to maintain the examinerā€™s attention and made appropriate social overtures. His response to the examinerā€™s social interactions was limited. Most social communication included some reciprocity (back-and-forth), but he tended to engage in more one-sided or weaving communication (e.g. offering topics, facts, or information).

As a result, the quality of rapport was sometimes comfortable and sometimes stilted. With respect to Restricted and Repetitive Behaviors, which are best referred to as special interests, repetitive actions, or desire for routine and sameness, Radicalautonomy did use echolalia and used some unique verbalizations that seemed to be idiosyncratic or stereotyped (i.e., highly repetitive utterances with consistent intonation patterns).

permalink
report
reply

Manā€¦I know the point of these assessments is to be as critical as possible and the report is supposed to be detailed, but I find that report judgmental af. I wonder why. Am I sensitive to things like that? Is it the tone? Was it that they were critical about certain matters, such as someone judging you because you didnā€™t do things they didnt ask of you and it comes off as them being entitled? Any ideas??

permalink
report
parent
reply
3 points

I think the doctor was just being thorough. I didnā€™t take it as judgmental. She really just wanted to highlight every area in which a neurodivergent person might differ from neurotypical people. There were a lot of parts of the diagnosis which stated ā€œ[In this area being discussed], Radicalautonomy was unremarkableā€, meaning I did not differ significantly from neurotypical people in that area.

permalink
report
parent
reply

Thanks for that! Based on what you said, I think my judgement of her report is more of a thing I bring to it. Now, I gotta figure out whatā€™s going on with me that I felt that way. šŸ¤”

permalink
report
parent
reply
3 points

I am trying to find a place locally to take my assessment, but because Iā€™m an adult, I need to pay for it. Itā€™s so hard to get an adult diagnosis, like as if they are trying to prevent you from doing this, because it has no presence in an adult, so youā€™re wasting our time.

I hope I can bring back some quality lines.

permalink
report
reply

I had to pay for mine too. Luckily, I found out that my local state university has a program for autistic people of all ages. I asked them for an assessment. While they didnā€™t conduct the assessments themselves, they gave a long list of psychologists in the area that did. I used that to find someone and was assessed within ~1.5 months. Perhaps there is something similar in your area. Maybe try internet searching for your location and autism services to find a starting point.

I hope I can bring back some quality lines.

šŸ˜

permalink
report
parent
reply

Autism

!autism@lemmy.world

Create post

A community for respectful discussion and memes related to autism acceptance. All neurotypes are welcome.

We have created our own instance! Visit Autism Place the following community for more info.

Community:

Values
  • Acceptance
  • Openness
  • Understanding
  • Equality
  • Reciprocity
  • Mutuality
  • Love
Rules
  1. No abusive, derogatory, or offensive post/comments e.g: racism, sexism, religious hatred, homophobia, gatekeeping, trolling.
  2. Posts must be related to autism, off-topic discussions happen in the matrix chat.
  3. Your posts must include a text body. It doesnā€™t have to be long, it just needs to be descriptive.
  4. Do not request donations.
  5. Be respectful in discussions.
  6. Do not post misinformation.
  7. Mark NSFW content accordingly.
  8. Do not promote Autism Speaks.
  9. General Lemmy World rules.
Encouraged
  1. Open acceptance of all autism levels as a respectable neurotype.
  2. Funny memes.
  3. Respectful venting.
  4. Describe posts of pictures/memes using text in the body for our visually impaired users.
  5. Welcoming and accepting attitudes.
  6. Questions regarding autism.
  7. Questions on confusing situations.
  8. Seeking and sharing support.
  9. Engagement in our communityā€™s values.
  10. Expressing a difference of opinion without directly insulting another user.
  11. Please report questionable posts and let the mods deal with it. Chat Room
  • We have a chat room! Want to engage in dialogue? Come join us at the communityā€™s Matrix Chat.

.

Helpful Resources

Community stats

  • 1.6K

    Monthly active users

  • 707

    Posts

  • 12K

    Comments

Community moderators