This has been on my mind lately. My dad is going through it, his sister has got it pretty bad and I apparently have the predisposed gene to get in my future.
I’m leaning no because I wouldn’t want to make my child go through slowly watching their dad’s mind leave them and also potentially pass it on to them when they get older.
It’s thrown me for a loop since I always imagined myself having kids and I’m around that age now.
What do you think?
Edit: I just want to say that I did not expect the kind of response this post got. I’m grateful for all of your comments and the perspectives it’s allowed me to peak into.
I also should mention that were I to have children they would most certainly not be burdened by being the crutch of my own personal journey of accepting and loving who I am. That is work for me alone and I would never unload that responsibility onto those I love and especially those who I’d be raising.
As for my partner not wanting kids, I would never consider forcing or persuading them to raise a child when they know for certain it’s not in their cards. This is another element in how I’ve been navigating this question. I love her with everything I have and I can’t imagine us being apart and yet there is a pang that lingers of the father I assumed I would eventually become.
Anyway, thanks again for your thoughtful replies. They’ve helped so much especially since this is the first time I’ve voiced these thoughts.
If you want kids you should have them. You can let fear of the ifs keep you from doing that. I say this being generally opposed to children as well lol
Yeah, only recently have I been opposed to having children outside of the Alzheimer’s question. We could afford to have them, but it would truly be paycheck to paycheck which I wouldn’t be comfortable with. Plus there are plenty of humans already on this poor planet.
Also, my partner is very against having children. Which I understand, but it’s a different place to be in life when I always imagined having them. Now I’m trying to decide if I truly want to have them and the boat is sailing since I’m 36.
It’s interesting to have gone the distance without having kids. Very few of my friends who had them seemed to enjoy the experience in the moment, but those few that did really did. Also, a couple of them lost the Russian Roulette and had kids with significant issues that currently can’t be fixed; they are staring down a potential lifetime of dealing with mental health and/or addiction issues in adult children.
I’m fundamentally a risk-taker, but the returns have never seemed worth the commitment and possibility of wildly adverse outcomes, particularly living under the American social and economic models.
Yeah moving into 36 years old and I’ve never felt like I need to rush into having kids because that’s just what you do. I know I would be a good dad, but if it’s not a burning desire should it be really something to take on? I feel like that should be an innate quality when making the decision to have kids.
Hi, I am from a family with a lot of autoimmune conditions like Crohn’s, Ankylosing Spondylitis, MS, and Alzheimer’s. My father started to “lose it” in his late 50s, retiring a little early. He lived a long life until early 90s but the last ten years were hard on everyone. But my mother took care of him and we will tried to help.
I was 38 when our child was born. I was very concerned about passing on anything and he probably is going to have Crohn’s or IBD.
But here’s the thing. All of my family has done our best to live our best lives and yes it isn’t the best physical condition at times but we have loved, taken chances, l made mistakes, had laughs, etc. That’s worth it.
I’ve also known people who were ironman triathlon champs having heart attacks.
Only you can decide on kids. That’s not why I’m here. I’m here to tell you the chance that you or they might have Alzheimer’s doesn’t have to be the deciding factor.
Also, there are pilot studies in Alzheimer’s vaccines and other treatments.
One thing I don’t see mentioned here at all is the financial burden incurred by caring for a family member with serious problems like this. Obviously this is very dependent on the country in which you live but at least in the United States it is very possible to be buried in debt for caring for someone else. Personally, I will be trying to pay off medical bills from taking care of a family member in their final days probably for the rest of my life barring a miracle.
I’d rather not potentially saddle my children with the same if I can avoid it.
If you decide to have kids and choose to have a co-parent, rather being a single parent, choose a co-parent who also wants kids. Having kids with someone who doesn’t want them is cursing the kids to be raised by someone who doesn’t want them, which can have significant emotional consequences.
Yes, but I’d adopt if I thought it was inheritable. Raising kids doesn’t have to mean giving birth to them.
That doesn’t avoid their concern about condemning their kids to watch them go through it.
not having kids means ending your own gene pool litereally weeding out your gene from thousands of year of evolution.
I have strictly instructed my family, including my wife, that if I ever develop alzheimers I want to be euthanized. If I am sufficiently lucid at the point of diagnosis I will have no problem overdosing on something and going out in peace.
I’ve come up with the idea of an annual test of basic facts and current events (very basic). Once I get to the point where I can’t pass this test with flying colors, off me and launch my corpse into the ocean via trebuchet plz. Game over. Not interested in seeing where the rest of that ride goes. Seen it many times before with family members and I don’t like it.
Problem is there’s a catch 22. If you’re not lucid enough to answer those questions, you’re not lucid enough side whether you live or die from a legal standpoint.
Every law I know that allows euthanasia requires that the person have a terminal illness and enough mental faculties to make the decision. You run the risk of a loved one getting tried for murder if you ask them to give you the drugs and you are not competent to make the decision yourself.
With diseases like this you get better and worse days. What one should do is do the test daily and track it. If you see gaps in the test results (like you see that last 2 days you didn’t take the test but don’t remember why, or failed the test yesterday) you end it. At this point it’s clear that the next step will no not knowing where you are at all so there’s no point at prelonging it. You should nitrogen gas ready somewhere.
There have been some major strides in treatments that slow and/or halt the progression of Alzheimer’s recently. I would think that in the next 30-50 years it would be a much more manageable disease.
I understand the concern of passing it down, but there is always adoption or sperm/egg donation, if you still wanted to be a parent. Honestly, nothing is guaranteed. You could die of something else long before Alzheimer’s could develop, or you could live to 100 in perfect health. Most of us will fall somewhere in between.
I wouldn’t let something like that stop you from starting a family if it’s what you really want in life.
Yes, my dad has been on medication that slows it, but it’s definitely taken a turn these past few months. We had to get the doctor to tell him to stop driving this month. It’s been really hard on him especially since he doesn’t know why and thinks it’s his fault and that it must be because he is simply too dumb enough to drive. It’s truly heartbreaking.
Also, that’s a good point that something entirely different could happen before Alzheimer’s.
I don’t have really any big fears in my life. I’m good with heights, I can run workshops and talk in front of hundreds of people. But I’ve always truly feared losing my mind since my psych 101 class in college. My plan is to go to a country that allows assisted suicide if I do end up getting it and can still make decisions in my right mind.
Hell No. why hand that crap on to someone else. If I want kids I’d adopt.
